Last Monday I went to my 4th visit with my LLMD (Lyme literate medical doctor). I came fully armed with research and a lot of questions. Here's the summary:
1.) BARTONELLA
Or also referred to as BLO (Bartonella like organisms) in the Lyme world, and aka cat scratch fever. This is one of the common co-infections that gets transmitted with Lyme. Or I guess you can get it from a scratch of an infected animal and some sources say mites, and I forget what other biting insects. It comes with it's own symptom list that can be as bad or even worse than Lyme. My doc and I are pretty certain I have this and it is the reason my feet feel like I'm standing on fire everyday. We had not addressed this yet medically (no treatment for it yet). So we switched one antibiotic for another of my cocktail of 3 as well as added a (expensive of course) neutraceutical. Hopefully I won't herx too bad with the change up.
2.) CHELATION THERAPY
I had been on this over 2 months, about 2 and 1/2 months now using DMSA to pull out my heavy medals. This is likely another big reason (along with unaddressed bartonella) that I was getting worse. I can not tolerate chelation, it's too hard on me so we decided to stop. This girl's gotta be able to keep working.
3.) THE MOLD AND MEDAL "ONION"
My LLMD feels strongly that with my toxic mold and heavy medals we cannot get down to the root of the problem, the Lyme. It was explained to me to think of it like an onion, the outer layer is the mold and medals and you can't get down to the Lyme inside until you fully address and eliminate those. We have tried the longer slower less expensive route and I could not tolerate it. So my doc wants to me to go to THE expert in environmental medicine that as I understand it, created this detox program that is suppose to be one of the best.
4) ENVIRONMENTAL HEALTH CENTER OF DALLAS
www.ehcd.com
This is where I need to go next to do intensive detox for molds and medals. Basically you go there every day and do what you need like a 9-5 thing Monday-Friday or Saturday (and I'm complicated so probably a few weeks) until your better. Sounds great right?! Well this place is not in network with any insurance so you have to pay upfront cash/charge. They don't even offer payment plans nor care credit card. And depending on how much you do/need it can add up very quickly. A very rough estimate of what it could end up costing me for all I would need to help me is 10k-20k. Here is their estimate price sheet:
The possibility of this place in my future what my biggest reason I started my fundraiser recently. I have a lot of medical debt charged already, and I will probably open a new credit card where I can get no interest for a year to use at EHCD. I start the second week of September. I have researched to see if other places provide similar programs and are covered by insurance. The only other options I found are also cash based. If anyone knows of any places that have programs similar please let me know. To give to my fundraiser and help me get the next treatment I need to get better see my page:
https://www.youcaring.com/medical-fundraiser/tara-s-lyme-fight-fund/213367
Thanks again for all your love and support!
Tara
"Search me, O God, and know my heart: Try me, and know my thoughts; And see if there be any wicked way in me, And lead me in the way everlasting."
Psalm 139:23-24 ASV
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